Charity Auction for FOP Action

On Saturday 1st September there will be a Charity Auction night being held at Thirsk Town Hall in North Yorkshire, starting at 7pm. All the proceeds from the evening will go straight to Oxford University to help them continue the research into FOP.

Tickets cost £5 for the event which includes a licensed bar, a pie & pea supper and live music from local band Borderline.

There are 35 auction lots on the night and here they are if you would like to prebid on anything.

Food & Drink
LOT 19 – A night in a Yurt with evening meal, bottle of wine and breakfast
LOT 2 – Overnight stay at the Crab Manor, Topcliffe with breakfast
LOT 24 – Sunday lunch for 2 at the Spa Hotel, Ripon
LOT 14 – Sunday lunch for 2 at The Red House, Carlton Miniott
LOT 9 – £25 Wetherspoon’s voucher

Family Fun
LOT 1 – Free plays at the Wacky Warehouse
LOT 22 – Family pass to York Water World
LOT 27 – Free entry to Diggerland +10% off further admissions
LOT 3 – Family pass to Castle Howard
LOT 31 – Family pass to Big Sheep Little Cow
LOT 11 – Family pass to Newby Hall and Gardens
LOT 15 – Family pass to Yorvik Viking Centre
LOT 7 – Family travel ticket to Embsay and Bolton Abbey steam railway
LOT 34 – Free plays at Adventure Point, Darlington
LOT 23 – 2 x 30 minutes at Quads 4 All, Hartlepool
LOT 28 – 1/2 term of modern dances at Butterfly School of Dance

LOT 8 – Rug from Calvert’s Carpets

LOT 18 – 2 tickets to Sheffield Wednesday 2012/2013 season
LOT 10 – 2 tickets to York City FC 2012/2013 season
LOT 35 – Stadium tour for 4 people at Middlesbrough FC
LOT 29 – 1 adult and 1 child ticket York City Knights
LOT 33 – TFM 3 Legends signed football

Toys & Games
LOT 13 – 10 packs of Supa Blox
LOT 4 – Talking Star Wars plush toys
LOT 25 – Captain America game
LOT 17 – Hot Wheels Battle Force
LOT 20 – Brio train set, railway crossing, 2 cars
LOT 5 – 2 Club Penguin games
LOT 30 – Fur Real Scoot and Scurry city, + 5 other sets
LOT 12 – Wild Science girls craft sets
LOT 32 – Wild Science boys craft sets
LOT 16 – Graco baby doll play set and twin talking dolls
LOT 26 – Disney Magic Rise Oven
LOT 6 – Addict a Balls
LOT 21 – Baby 3 part bundle (train jigsaw, talk & learn robot, cuddly toy)

Thanks to all the companies who have donated a prize for the auction, and for anymore information about the event or to get your tickets contact

Virgin giving site now set up for climb up mount kilimanjaro


Manchester to Blackpool ride was a great success.

Craig Cording Rachels brother in law and his 9 friends did the ride in 4 hours 27 mins. Craig did really well as he had a bad leg himself due to an accident at work where a pile of scaffolding fell on him 3 years ago. One of his legs is numb and he has to wear a special thing in his shoe so we are really proud of him for doing it for FOP. Pauls Rachels husband took about 7 hours but we are very proud of him for finishing as he didnt do much practice before hand. I think the most he did in practice was 10 miles in one go. Warren Whittaker Rachel’s cousin did the ride last year also for fop and helped Paul all the way.
Thank you all so much Julie Hopwood, Rachel and family.


Seanie from London who has FOP sister’s Sinead and Sarah are organising an amazing climb up Mount Kilimanjaro for next August 2013. If anyone would like to join them please see the following document.

Thank you FOP FRANCE

An enormous thank you for all our friends across The Channel FOP FRANCE, for their amazingly genourous donations for FOP RESEARCH. Antoine Lagoutte and family anf friends have now raised £10,000 for FOP RESEARCH. The finance officer at Oxford have just received the first payment and the second is to follow. This is an amazingly genourous amount of money and its just so good to know that we have the support of our neighbours over La Manche, This will be taking our barometer to over £40,000 without all the other fundraisers that are taking place at the moment and those that are planned for later in the year. Merci beaucoup-c’est exceptional.

Tough mudder and Manchester to Blackpool bike ride for FOP research.

Good luck to everyone taking part in these very hard challenges to help us get to our goal of £120,000 this year. Please support them by clicking on Virgin money giving ,only thirteen days to go to the Tough mudder challenge.

Also next weekend there is a large group of family and friends of Rachel Winnard from Rochdale going to do the Manchester to Blackpool Bikeride. Please support Paul, Rachels husband on the Virgin giving site.

Barn dance, car wash and Unicorn Pub all raise money for FOP research.

Well done Sheryll mum of Lucy with fop for raising £1,400 with a barn dance and £370 with a car wash at the local Fire Station. Thank you so much to everyone involved.

Lucy has also appeared in the Sun online newspaper to help raise awareness and to try and get more support for fund raising.

A massive thank you to The Unicorn Pub, Wollaston in Stourbridge for raising £500.

Family fights to save child with rare genetic disorder FOP

Fop is one of the rarest genetic disorders in the world as it only effects one in two million people but there are many amazing people around the world trying to raise awareness for the condition. Thank you Ali and her family, hopefully this may help other young children get an easier diagnosis than Ali did.

The Hobbies play to raise money for fop research.

A massive thank you to Sarah Coulson and everyone who helped to organise an amazing night at the cosmopolitan Hotel in Hartlepool. We all had a brilliant night and the band The Hobbies where fantastic. We had a raffle and a tombola, we are so very grateful to everyone who donated prizes. Sarah raised £750 she also works for Barclays Bank who have agreed to match the amount.

Would like to also thank Pat Murphy who works with toy companies. She is helping my cousin Jenny with prizes for upcoming events. She has been given some great toys and two companies have made donations. Thank you to Interplay UK for donating £500 and The Sales partnership ltd for donating £100.

Jasmine has been in the local paper again to try and get more support. Here is the article.
We are so grateful for such kindness from all my friends and family.
Please support Andrew and Kev who are undertaking a massive challenge in climbing the three peaks in 24 hours. Jun 12 Events, Fundraising

FOP Coffee Morning @ Rochdale Town Hall (Fri 15th June, 10am – 12:30pm)

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