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FOP Quiz night in Rochdale

Hi, I organized a quiz night on the 10th of June which raised £1,158. Just wanted to say a big thank to everyone who helped make that happen. Thanks to everyone who attended it was a great night hope you all enjoyed it, especially the dog racing. Rachel Winnard x
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Sienna and Jasmine loved staying at the hotel. When it was time to go home from from the fundraiser Jasmine asked can she go back to Rochadale meaning the hotel-so cute.

Sienna and Jasmine loved staying at the hotel. When it was time to go home from from the fundraiser she asked can she go back to Rochadale meaning the hotel-so cute.


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Jasmine and Oliver met for the first time. Kept mums and dads busy and had a great time on the dancefloor.

Jasmine and Oliver met for the first time. Kept mums and dads busy and had a great time on the dancefloor.

FOP QUIZ NIGHT FRIDAY 10TH JUNE 2011

Hi all just to let you know Seanie’s sister Sarah and her friend Stacey organized a Quiz Night to raise monies for Oxford University FOP research. Sinead, Seanie’s other sister compared the quiz to a packed noisey pub with a dodgy microphone, hence no voice today. We raised over a thousand pounds (still some odd monies to come in).

Will have to contact Barclays Bank as was initially told they would match any fundraisers that I did. Plus Barclays have agreed to take Oxford University FOP Research on for another year as their extra charity.

Marian
seanie and jess quiz night
seanie jess dan and faye quiz night
sinead quiz night
sarah and stacey the organisers

Rochdale Town Hall Coffee morning a great success

A big thankyou to Chris and Helen for all the fundraising, please see the links to little Oliver’s website.

http://www.friendsofoliver.com/blog/2011-06/57/rochdale-town-hall-coffee-morning-great-success

http://www.friendsofoliver.com/blog/2011-06/56/brilliant-beth

http://www.friendsofoliver.com/blog/2011-06/71/update-cameron-kieron-olly-and-imogens-run

Upcoming events.

Thursday 9th of June Rachel Winnard in Pick me up Magazine issue 24.

Rachel Winnard’s Quiz and Race night, Friday 10th of June at The Radcliffe Arms, Rochdale football ground. £6 a ticket includes pie supper and Quiz.

Sponsored walk in honor of Jasmine Sanderson in Hartlepool 10th of July.

Little Jasmine’s sponsored camp out

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Our little Jasmine age four who suffers from FOP did a sponsered camp out and raised £145 at her school St John Vianney Primary School, Hartlepool. Jasmine and her ‘family at school’ a selection of different aged children choose to raise money for FOP research. The children had a great time singing songs around a campfire having popcorn and treats. Thanks to Amanda Cronin, Sarah Kay for choosing to support us and all the children that took part in the freezing cold. Thanks to Margie jasmine’s aunt who is her one-to-one at school keeping her safe.

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Jasmine ready for school with her big sister Sienna.

Here is another little girl on CTVNews who is waiting for a better treatment like our Jasmine.

Curry night fundraiser

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Thanks to Gary and Julie for organising the cook off at their house. Gary and Dave both made two curry’s and we voted on which we thought was the best, it was a draw and we also liked Julie’s cheese and onion pie. We all had a great night it was nice to get together and raise money at the same time. Gary and Julie green are Paul and Rachel’s friends and Dave Holleran is rachel’s uncle.

Help the IFOPA win up to $250.000 for FOP research

Hi all,

I’ve managed to get IFOPA listed on the Vivit Gives Back project.

http://www.vivint.com/givesbackproject/charity/183

This is to win a significant chunk of money for the IFOPA so tell everyone and endorse us once every day until the end.

We did this last year “Erin” sorted it out (it used to be called APX Gives Back) and I think we came forth but recieved some donations from them anyhow.

Get voting.

Chris Bedford-Gay
Dad of Oliver 3 (diagnosed @ 1)

The woman, not the mask.

http://www.ocregister.com/articles/-295441–.html#article-comments

Thankyou Jamie

Jamie who is a friend of Rachel Winnard who suffers from Fibrodysplasia Ossificans Progressiva ran the London Marathon to raise much needed money for FOP research.

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Bound By Hope: One Family’s Story

Watch four year old Josh Scoble and his family in this Video.
The Scoble family have done so much to raise awareness and funds for research in the US. Little Josh you are amazing.

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