Louise Wedderburn tells of donor delight

A girl with a disease that is turning her into a ‘statue’ has praised a kind-hearted donor who forked out £330,000 to find a cure. Louise Wedderburn, 16, was diagnosed with rare FOP – Fibrodysplasia Ossificans Progressiva – aged just three. It causes the teenager, of Fraserburgh, Aberdeenshire, to grow what is almost a second skeleton, locking her limbs like a statue and crushing internal organs. But businessman Richard Simcox, from nearby Banchory, has ‘forked out the huge sum on research at Oxford University. Thanks to his support they hope to find a cure within four years.’