Information

What is FOP?

FOP in an abbreviation for Fibrodysplasia Ossificans Progressiva previously known as Myositis Ossificans Progressiva. FOP is a rare and distressing medical c...

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Who can get FOP?

Most cases of FOP are new, meaning no one else in the family has FOP. This happens because sometimes unexpected changes (or mutations, the scientific word for c...

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Have I got FOP?

FOP often begins in the neck and the shoulders and progresses along the back, trunk and limbs of the body. People are born with malformed big toes (short, bent ...

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How can I Help?

You can donate money to Oxford University where Professor James Triffitt of Oxfords Institute of Muscloskeletal Sciences is one of the few scientists in the wor...

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About FOP Action

FOP is an abbreviation for Fibrodysplasia Ossificans Progressiva, previously known as Myositis Ossificans Progressiva. FOP is a rare and distressing medical ...

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More Information About FOP

Demographics of FOP Genetic disease affecting 1 in 2 million people worldwide No ethnic, racial, or religious patterns 700 confirmed cases across the glo...

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Our Committee

President Mr Richard Simcox Chairman Mrs Sheryll Hadley Medical Advisers Professor James Triffitt Professor Roger Smith Professor Paul Wordswor...

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Research

Below are links to various articles detailing research carried out into FOP. We will continue to update this page as new research is carried out. Autumn 2013...

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FOP Sites Around the World

There are many FOP sites that have been set up around the world including FOP Action in the UK. Below are links to various International FOP websites. Intern...

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FOP Support Guidebooks

If you are wanting to find out more information about FOP or to learn about where you can get support on how to deal with FOP then we recommend that you visit t...

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FOP Facts Leaflet and Sponsor Forms

If you are fundraising for FOP and want to hand out some information to friends and relations we have created a fact sheet for you to print out. FOP Facts Fu...

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Fundraising

FOPACTION T-SHIRTS can be bought to help raise awareness. You can order them by getting intouch through the website by using the contact page. T-shirts cost £...

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