Have I got FOP?

FOP often begins in the neck and the shoulders and progresses along the back, trunk and limbs of the body. People are born with malformed big toes (short, bent and sometime curved inward).

FOP is congenital meaning starting at birth but bone formation usually begins within the first two decades of life, the majority before the age of ten.

Inflamed and sometimes painful swellings typically in the shoulder and back areas and sometimes on the scalp or head are usually the first sign of FOP.

Rate of progression is unpredictable but seems to have a pattern of bone formation. It tends to occur in the neck, shoulders and the upper back early in life and in the hips and knees during adolescence or early adulthood.