Here are some FOP websites and blogs from different people around the world.
shane terry a 5 year old boy who was diagnosed with FOP in may 2008
http://www.weldonfop.org/ A website all about Whitney weldon a 17 year old girl who was diagnosed at 9.
Bingo for a cure A website for 3 year old Josh Scoble who was diagnosed at 3 months.
Hayden’s Hope A website for Hayden Pheif a 10 year old boy who was diagnosed when he was 2.
Crooked Guy A blog about Nick Mahler about his adventures in life and living with FOP.
Friends with FOP A blog about the lives of two young girls with FOP Erin Kate and Miranda.
A bio about Jud Bogard
FOP sverige This is the Swedish FOP website but has alot of information and pictures of a young boy Hugo
FOP websites and blogs
Categories
- Articles (4)
- Faces of FOP (21)
- Fundraising (34)
- General (54)
- Research (7)
- Support (2)
Archive
- December 2011
- November 2011
- October 2011
- September 2011
- August 2011
- July 2011
- June 2011
- May 2011
- April 2011
- March 2011
- February 2011
- January 2011
- December 2010
- November 2010
- October 2010
- September 2010
- August 2010
- July 2010
- June 2010
- May 2010
- April 2010
- March 2010
- February 2010
- January 2010
- December 2009
- November 2009
- October 2009
- September 2009
- August 2009
- July 2009
