Here is a picture of the little bear who will travel the whole 96 miles of the West Highland Way tomorrow.
Good luck to everyone taking part.
FOP bear ready for the challange
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Well we did it 23hrs 30mins hardest thing I have ever done big thanks to all the boys involved big mention to Garry Somerville who started the ball running for this event . Hope we get lots of money in for FOP action
George
George 7th May 2010 @ 15:25
Thank you to everyone who took part it really means a lot to our family. With fop being so rare with only 45 people in the UK every penny counts.
My little girl Jasmine is only 3 she cannot lift her arms much and has little movement in her neck and back so everyday we hope we are getting closer to a better treatment or cure. Now that the gene was found that causes FOP in 2006 its just a matter of time until there is a better treatment.
If anyone would like to raise money for a charity please help us.
kelly sanderson 7th May 2010 @ 18:43