General Archive

Margot James highlights low profile and rare diseases

03 May 12 General, Support 0

Please help us spread the word today is international FOP awareness day

23 Apr 12 Fundraising, General 0

FANTASTIC NEWS – WE NOW HAVE A PATRON FOR FOP ACTION

21 Apr 12 General 4

Line dancing for FOP research

18 Apr 12 Fundraising, General 2

Congratulations to Louise Wedderburn who will be appearing on a tv show The Human Mannequin

17 Mar 12 General 0

Thankyou to Alan Calvert’s family.

10 Mar 12 Fundraising, General 0

Jasmine in the Hartlepool Mail to try and get support for fundraising

27 Feb 12 General 0

Venue and time for Sunday the 26th of February meeting.

21 Feb 12 General 1

FOP ACTION UK AGM – BOTNAR RESEARCH CENTRE OXFORD 16TH FEBRUARY

16 Feb 12 General 0

Thankyou Theatre Dance Workshop, Denton Manchester for raising 2,000 for fop research.

13 Feb 12 Fundraising, General 0

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FOP Action : Fibrodysplasia Ossificans Progressiva
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fibrodysplasia os·sif·i·cans pro·gres·si·va

n.

An inherited generalized disorder of connective tissue in which bone replaces tendons, fasciae, and ligaments.

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