Working to raise awareness and help find a cure
FOP Action was founded to offer a forum for advice and support to all those affected by FOP, creating a place to find out about helpful aids and equipment and to exchange views and ideas. Since the discovery of the FOP gene in 2006, finding treatments and a cure are a distinct possibility but we need help to support research.
What is FOP?
FOP in an abbreviation for Fibrodysplasia Ossificans Progressiva previously known as Myositis Ossificans Progressiva. FOP is a rare and distressing medical c...
Who can get FOP?
Most cases of FOP are new, meaning no one else in the family has FOP. This happens because sometimes unexpected changes (or mutations, the scientific word for c...
Have I got FOP?
FOP often begins in the neck and the shoulders and progresses along the back, trunk and limbs of the body. People are born with malformed big toes (short, bent ...
How can I Help?
You can donate money to Oxford University where Professor James Triffitt of Oxfords Institute of Muscloskeletal Sciences is one of the few scientists in the wor...
Download the Oxford Thinking General Report for more information on current research projects, future direction and fundraising figures
FOP News
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NEW BBC ONE TV SHOW NEEDS YOU!
NEW BBC ONE TV SHOW NEEDS YOU! Are you suffering from a health problem and you’re not sure what it is? Is your condition affecting the way you look, your confidence or your emotional wellbeing? Do you want to know what’s wrong with you and get treatment? Maverick Television, makers of E...
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FOP websites and blogs
Here are some FOP websites and blogs from different people around the world. shane terry a 5 year old boy who was diagnosed with FOP in may 2008 http://www.weldonfop.org/ A website all about Whitney weldon a 17 year old girl who was diagnosed at 9. Bingo for a cure A website for 3 year old Josh ...
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Fat and muscle turned into bone and cartilage.
The following article Fat and muscle turned into bone and cartilage is about a study where a virus with the fop gene was purposely introduced into bone fractures in rats. Apparently it helped the fracture healing.
