Working to raise awareness and help find a cure
FOP Action was founded to offer a forum for advice and support to all those affected by FOP, creating a place to find out about helpful aids and equipment and to exchange views and ideas. Since the discovery of the FOP gene in 2006, finding treatments and a cure are a distinct possibility but we need help to support research.
What is FOP?
FOP in an abbreviation for Fibrodysplasia Ossificans Progressiva previously known as Myositis Ossificans Progressiva. FOP is a rare and distressing medical c...
Who can get FOP?
Most cases of FOP are new, meaning no one else in the family has FOP. This happens because sometimes unexpected changes (or mutations, the scientific word for c...
Have I got FOP?
FOP often begins in the neck and the shoulders and progresses along the back, trunk and limbs of the body. People are born with malformed big toes (short, bent ...
How can I Help?
You can donate money to Oxford University where Professor James Triffitt of Oxfords Institute of Muscloskeletal Sciences is one of the few scientists in the wor...
FOP Action Slides 2013 & Spring 2013 FOP Update & Donation Update Mar 2013 & FOP Action Minutes
FOP News
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BBC WM – Nick Conrad talks FOP with Sheryll Hadley
Sheryll, chairman of FOP Action, did a brilliant job of raising awareness of FOP in the UK through her BBC Radio West Midlands interview with Nick Conrad. You can listen to the interview by clicking here [Forward to 2 hours 50 mins]. A big thank you to Sheryll for being brave enough to talk abou...
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Today is FOP Awareness day.
Please everyone raise awareness today. We are making real progress with research and together last year we raised the largest amount ever raised for FOP research at Oxford University. We still have a long way to go this year but if we all work together we CAN make a difference. UPCOMING EVENT...
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Latest fundraising
Vide Grenier for FOP ACTION/FOP FRANCE On Saturday March 23rd, we held our first ever car boot sale in France for FOP ACTION/FOP FRANCE. We received many kind donations of Bric and Brac, freshly baked croissants from the Village Bakery and homemade scones. Friends worked hard to support the even...
