Working to raise awareness and help find a cure
FOP Action was founded to offer a forum for advice and support to all those affected by FOP, creating a place to find out about helpful aids and equipment and to exchange views and ideas. Since the discovery of the FOP gene in 2006, finding treatments and a cure are a distinct possibility but we need help to support research.
What is FOP?
FOP in an abbreviation for Fibrodysplasia Ossificans Progressiva previously known as Myositis Ossificans Progressiva. FOP is a rare and distressing medical c...
Who can get FOP?
Most cases of FOP are new, meaning no one else in the family has FOP. This happens because sometimes unexpected changes (or mutations, the scientific word for c...
Have I got FOP?
FOP often begins in the neck and the shoulders and progresses along the back, trunk and limbs of the body. People are born with malformed big toes (short, bent ...
How can I Help?
You can donate money to Oxford University where Professor James Triffitt of Oxfords Institute of Muscloskeletal Sciences is one of the few scientists in the wor...
2011 FOP Update & Donation Update Jan 2011
FOP News
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Merry Christmas
Here is a picture of Little Oliver raising awareness for fop at his local church Hope everyone has a Merry Christmas and a Happy new year. Thankyou to everyone for raising much needed awareness and funds for Oxford fop reserach, please keep intouch and keep send pictures in or anything else you ...
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New fop website for little Addie
Please see Addie's fop journey website.
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A TRULY MAGNIFICENT BREAKTHROUGH FOR FOP RESEARCH.
Dear Friends within the UK FOP Community As we all know, in 2006 we witnessed the first major breakthrough in the quest for a cure, thanks to the work of International Research Team members based in Pennsylvania, USA ,The Botnar Research Centre Oxford, UK and a number of other centres in ma...
